Almost 2 years in with my paralyzed boy. I love him fiercely but I am exhausted in a way I didn’t think possible. Bladder expressions 4x/day, repositioning every 2 hours overnight, juggling specialist appointments, and I haven’t had more than 3 days off this entire time. Friends don’t get it. Family thinks I should ‘put him down already.’ Anyone else feel like they’re losing themselves to this? How do you keep going?